So, in all of this my doctor has proven to have horrible follow through. I found out she got the results last week, reviewed them earlier this week and never had anyone called. I called three times, the first was ignored, the second I got a massive apology and a promise from the receptionist that Dr S's MA would call me back, and the third time? I got a call back from not my doctor's MA who sort of explained the results, but just seemed confused and told me "She wants to do more work, and ordered some tests. I'm not sure which ones, someone will probably call you."
Defeated, I went by today and picked up the results (Oh, and they forgot one of them, and I had to go back and ask again) Anyhow, here they are:
The cortisol results from the dex-suppresant (take at 11pm, blood draw at 8am) were: 0.6 ug/dL LL (I suppressed, so it's a normal result)
The 24-hr urine test provided these values:
U Cotrisol Free 9.8 ug/d
U Collection Volume: 1550 mls
U Creatinine mg/24hr 992 mg/d
U Creatinine mg/dL 64 mg/dL
U Cotrisol Free raw Data 6.31 ug/L
U Cortisol ug/gm Cr 9.86 ug/g
All seem mostly normal, but I think because I still had symptoms, and so many of the tests come up with false negatives, more tests were ordered (But, I still don't know which ones) I'm thinking of just skipping to the next step and trying to get in to see an endocrinologist, since my doctor in our appointment showed how unfamiliar she was with Cushing's (Not surprising, it is pretty rare)
But overall? Feeling pretty frustrated and discouraged about the lack of communication, and no real answers.
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