I got a call back from Dr. S' Medical Assistant, who (not surprisingly) doesn't know what's going on. I know that if I want anything from Dr. S it means making an appointment, and paying another co-pay. I called and left a message for an endocrinologist that is covered under my insurance. No call back yet, but I know they can get sort of swamped. I'll wait till next week and call again. Plus, Colin got the news he needs all 4 wisdom teeth pulled. Our insurance is covering around 80% of it. But it still leaves a big chunk to come out of our empty looking bank account. I hate that most of the time I feel like a giant draining resource to everyone around me. I am grateful to everyone who helps me out, but I hate having to be the person that others have to help out.
Today I thought about how if it's this hard to get answers for someone who has decent insurance, if I stopped having insurance, then what? I guess you just slip through the cracks of America's healthcare system.
There are times like today that I wished my doctor just hadn't said anything. Yes, I am grateful that someone pointed out to me my symptoms align (a little too closely) with a serious disease. But, it's like being blindfolded and handed a puzzle. How are you supposed to put it together if you don't have the right medical knowledge to see what you are looking at?
Allison,
ReplyDeleteThanks for reading my blog. I'm reading about your journey now, and want to offer my support. Cushing's is a terrible disease, and it can be a beast to get diagnosed. If you can, you probably want to look into traveling to see one of the Cushing's experts. You could have cyclical Cushing's, where you cycle between low and high cortisol, or normal and high cortisol.
Sarah, thanks for stopping by. Your blog has been great source of information for me. It's been nice to read about someone elses journey.
ReplyDeleteI've read a little bit about cyclical cushing's, and I wouldn't be surprised if that's what it is.
After I try a few of the endo's around here, I might try to get up to Seattle. It's hard, all the doc's can be so expensive. Even though I have insurance, it doesn't always cover everything.